State Senator Chuck Weaver with Director of DCFS Marc Smith and his staff. | State Senator Chuck Weaver | Facebook
State Senator Chuck Weaver with Director of DCFS Marc Smith and his staff. | State Senator Chuck Weaver | Facebook
Illinois Department of Children and Family Services Institutional Review Board Sept. 24.
Here is the agenda provided by the board:
I. Call to Order
II. Acceptance of Minutes
• August 27, 2024
III. Follow-up / Updates
• Pickett, Sue (2023-08) MEIL: “Amendment 3 (July 2024) Metro East Intact Family Recovery Program
Translation of study materials into Spanish by native speakers to enable conduting interviews in Spanish.
UPDATE: Moved to email resolution. DCFS DEI recommended researcher fully translate including program names and submit with English language forms to DCFS Policy to ensure consistency with existing program language. Information communicated to researcher for follow-up.
• Tu, Shao Ching: “Clinical Trial Gene Therapy in Patienty with NGLY1 Defienciency”
Potential clinical trial to benefit AM. A formal IRB packet has not yet been submitted, however, information on the existing clinical trial has been shared with the IRB members for a preliminary review.
UPDATE: Holding for further conversations with doctors and family
IV. New Proposals
• Schneider, Will (2024-09) EmPwR:
The study hypothesizes that a cash gift program will reduce economic and racial disproportionality in the child welfare system and lead to positive physical and mental health outcomes for children and caregivers. They study group is drawn from caregivers receiving Intact Family Services from Bright Point. It is anticipated that the project will demonstrate that unconditional cash gifts are an effective means of preventing child maltreatment and child removal. The study will last 12 months with a monthly stipend averaging $500/month adjusted for local cost of living and number of children. The intervention and research design have been crafted to meet the standards for federal matching funds for maltreatment prevention programs under the Family First Prevention and Services Act.
V. Manuscript Reviews
• Garibaldi, Jordan (2023-03) YEC: Youth Experience in Child Welfare Residential Treatment
Submission for an academic journal entitled Youth-Reported Strengths and Challenges in Illinois Child Welfare Residential Care. Original study request submitted in March 2023.
VI. On Hold
• LaSota, Robin (2024-02): “Youth in Care aged 12+ Sexual Orientation, Gender Identity and Expectations (SOGIE) Supports Survey”
VII. Other
• Manuscripts: IRB approval process for manuscripts.
• Trainings: Required trainings (Ethics, Harassment/Discrimination Prevention, DEI, and LGBTQIA+) due October 31, 2024.
• Training website: https://OneNet.Illinois.gov/MyTraining.
• Rule & Procedure: Draft Rule 428 Review – Comments Due 10/9/24
▪ Requires non-statutory boards & commissions to establish formal Rules of Procedure and/or bylaws
• Next Meeting: October 22, 2024
VIII. Adjourn
https://dcfs.illinois.gov/content/dam/soi/en/web/dcfs/documents/about-us/impact-public-policy/documents/irb/irb-agenda-092424.pdf
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